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But You

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52 Page Booklet for Friends and Family. What to Say, What Not to Say and How to Help!

 

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Being Sick Well cover shotBeing Sick Well

 

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Disclaimer: The data contained in this web site are for informational purposes only and are not to be construed as medical or legal advice. IDA is not endorsing or promoting the content of other websites, by listing their links and cannot be held responsible for their contents. Please seek a medical or legal professional for advice.

 

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MS Information Links Page

"MS is thought to be an autoimmune disease that affects the central nervous system (CNS). The CNS consists of the brain, spinal cord, and the optic nerves. Surrounding and protecting the nerve fibers of the CNS is a fatty tissue called myelin, which helps nerve fibers conduct electrical impulses. In MS, myelin is lost in multiple areas, leaving scar tissue called sclerosis. These damaged areas are also known as plaques or lesions. Sometimes the nerve fiber itself is damaged or broken. Myelin not only protects nerve fibers, but makes their job possible. When myelin or the nerve fiber is destroyed or damaged, the ability of the nerves to conduct electrical impulses to and from the brain is disrupted, and this produces the various symptoms of MS" National MS Society www.NMSS.org

 

Note: IDA does not endorse or recommend any links,

websites or legal groups posted on our site. Please use with your own discretion.

Disability Issues

Unable to work? You may qualify for

the disability benefits you already paid for.

 

Allsup gets what you're going through. We understand the many challenges which accompany a mental and physical disability. With all the worries and stresses that your condition brings, you can sleep easy knowing that Allsup will take care of getting the Social Security disability you deserve. Our 97% success rate is proof of that [Information from Allsup, Inc].

 

Yes, I want a free evaluation to determine my eligibility. Click Here

THE DISABILITY BENEFIT INFORMATION LINKS PAGE! Click Here

THE DISABILITY ISSUES AND WEBSITES LINKS PAGE! Click Here

THE DISABILITY PRODUCTS AND SERVICES LINKS PAGE! Click Here

MS Websites

All About Multiple Sclerosis www.mult-sclerosis.org 

BigStickProductions www.bigstickproductions.com

Boston Cure Project www.bostoncure.org 

The Brain Matters www.thebrainmatters.org/multiple.htm 

Consortium of Multiple Sclerosis Centers www.mscare.org 

Coping and Prevailing www.copingandprevailing.com

Accelerated Cure Project for Multiple Sclerosis www.acceleratedcure.org 

Friends With MS www.friendswithms.com

Jooly's Joint www.mswebpals.org  

MS Active Source www.MSActiveSource.com

MS Assoc. of America  www.msaa.com

MS Central Support  www.mscentralsupport.com

MS Foundation  www.msfacts.org

MS MuSings- Online Magazine for MS http://msmusings.healingwell.com

MS Resource Center www.healingwell.com/ms

MS Society of Great Britain www.zyworld.com/mss_stevenage~district/Home.htm

MS University www.MSUniversity.com 

MS Watch - Keep watch on Multiple Sclerosis www.MSWatch.com 

MS-CAM: Center for Complimentary & Alternative Medicine www.ms-cam.org 

MSNet www.msnet.org 

Multiple Sclerosis and its Challenges (by S.W. Hussey) www.suite101.com/welcome.cfm/ms_challenges

The Myelin Repair Foundation www.myelinrepair.org

National Family Caregivers Association www.nfcacares.org

National MS Society  www.nmss.org

Rocky Mountain MS Center  www.mscenter.org

Rotarian Fellowship of MS Awareness www.rotary-rfmsa.org/Default.htm 

Suite 101: Multiple Sclerosis (by Pamela Martin) www.suite101.com/welcome.cfm/multiple_sclerosis

This Is MS - Unbiased Multiple Sclerosis Research, News, and Community www.ThisIsMS.com 

Tri-State MS Association www.tristate.ms

MS Articles/Treatments/Issues

Avonex www.avonex.com 

But You LOOK Good!- Why Seeing is NOT Believing When Dealing With a Chronic Illness! Part 1 of the booklet, "But You LOOK Good" www.myida.org/lookgood.htm

But They LOOK So Good! - The Paradox of Feeling Bad, but Looking Good. Excerpt of Part 1 of the booklet, "But You LOOK Good" www.myida.org/theylook.htm

Copaxone www.copaxone.com 

Coping with Invisible MS - Article from the Alliance Exchange © Avonex Alliance, written about Sherri and invisible disabilities. www.myida.org/coping.htm 

Disabled? You Don't LOOK Disabled! - Unmasking Society's Depiction of People with Disabilities. www.myida.org/disabled.htm 

The Fatigue Factor (Pamela Martin) http://www.suite101.com/article.cfm/multiple_sclerosis/38304

For Friends and Family: How to Help - Article from the MSFocus Magazine © the MS Foundation, excerpted from But You LOOK Good! www.myida.org/help.htm 

How We Feel - Put yourselves in our shoes by using the examples of our symptoms www.deannandlenny.com/feeling.htm 

I Never Know What to Say or Do! Learning How to Encourage and Help Someone with a Chronic Condition. Excerpt of Parts 2 and 3 of the booklet, "But You LOOK Good" www.myida.org/sayordo.htm 

Knowledge is Power! Educate the Masses!! - By S.W. Hussey and Sherri Connell. www.myida.org/knowledge.htm 

Life Planning and Independence (applying for SS Disability from The National MS Society) www.nationalmssociety.org/site/PageServer?pagename=HOM_LIVE_socialsecurity

Looks Can Be Deceiving! - Understanding the Debilitating Pain and Limitations on the Inside, Despite What You Can See on the Outside. www.myida.org/looks.htm 

Loosening the SSDI Knots  www.nationalmssociety.org/site/PageServer?pagename=HOM_LIB_imsapr07_looseningssdi

MS Fatigue www.albany.net/~tjc/fatigue.html 

Multiple Sclerosis: A Revival of Hope www.tldp.com/issue/11_00/ms.htm 

Multiple What? - Untangling the Perplexities of Multiple Sclerosis. An explanation to dispel assumptions that all with MS have the same symptoms and severity of symptoms. www.myida.org/ms.htm 

Nerve Fiber Fatigue in MS (and heat sensitivity) www.albany.net/~tjc/fiber-fatigue.html#Temp 

No Cast, No Cane, No Pain? Explains accessible parking rights & needs for people with "invisible" disabilities. www.myida.org/hndcpark.htm 

Procarin (DeLack's hypothesis)  http://heskco.com/karan/procarin/procarin.html

Swank MS Diet www.swankmsdiet.com 

Understanding the Unique Role of Fatigue in MS (it is not just normal fatigue) by Dr. by J. Lamar Freed, Psy.D. www.albany.net/~tjc/fatigue01.html 

Vitamin 'may block MS disability' http://news.bbc.co.uk/2/hi/health/5356274.stm

What's Happening to Me?: Invisible MS- By Frederick Munschauer, MD, Gina Gunkel, MS patient http://abcnews.go.com/sections/living/DailyNews/invisible

_ms020124.html# 

 

Why Don't They Just Take Something? - Living in the Gap Between Saved and Cured. Loved ones often assume that if their friend or family member is still sick, they must be failing to do what their doctor is telling them to do. This article is a window into why this is not always the case! www.myida.org/take.htm

LINK DISCLAIMER

LINK DISCLAIMER: IDA does not necessarily agree with information contained in these links. By listing these links, IDA is not endorsing or promoting their content! Information contained in this or any other site should NOT be construed as medical or legal advice! Use your own discretion and seek medical or legal advice from a professional.

EXCHANGE LINKS! If you would like to exchange links and you have an organization, foundation, association or informational site, please contact IDA. If you have a personal site, please consider adding your site to one of the WebRings or our Personal Site and Support Group Bulletin Board. Don't forget to add a link to IDA on your site!

By: Sherri Connell

But You LOOK Good! 

 

A Guide to Understanding and Encouraging People Living With Chronic Illness and Pain

 

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