Home But You LOOK Good Booklet All About IDA  What People Are Saying  Help Loved Ones Understand

Help Be A Voice Make A Donation IDA's Favorite Books   IDA Featured Add Banner   Our Sponsors

Join IDA's E-News Join IDA's Support Group Links WebRings  Sign Our Guestbook  Contact

 

The Invisible Disabilities Advocate®

QUICK INDEX!

Shop IDA's Marketplace

Buy Books, CD's, Shirts, Gifts, Bumper Stickers, Mugs, Buttons & More!

Check It Out!

Welcome to IDA

 ▪ Home Page

Help People Understand

 ▪ Articles / Publications

 ▪ "Invisible" Disabilities?

 ▪ But You LOOK Good!

About IDA

 ▪ All About IDA
 ▪ What People Are Saying
  Who & What Is IDA
 ▪ Our Board Members

IDA Projects

 ▪ The CIA Campaign
 ▪ IDA Seminars & Events
 ▪ Memorial Funds
 ▪ Programs 4 People
 ▪ Service Animal Awareness

News About IDA

 ▪ IDA's E-News
 ▪ Press & Media
 ▪ Where IDA Is Featured

Shop & Support IDA

 ▪ Shop IDA's eStore
 ▪ Shop IDAstuff.com
 ▪ Shop the iGive Mall
 ▪ Search the Net
 ▪ Our Books & Pamphlets

Spread the Word

 ▪ 7 Ways to be a Voice

 ▪ Add IDA's Banner
 ▪ View Our Sponsors

Support/Communication

 ▪ Guestbook Sign / View

 ▪ Message Board
 ▪ Online Support Group

IDA's E-News!

Sign Up Today! Free!

Online Resources

 ▪ Links

 ▪ WebRings

Contact

 ▪ Contact IDA

 

GoodSearch cause banner

 

But You

LOOK Good!

 

52 Page Booklet for Friends and Family. What to Say, What Not to Say and How to Help!

 

ONLY $5.25 or Less
Price Includes US Shipping
 

 

~Click Here~

 

Being Sick Well cover shotBeing Sick Well

 

Written By

Dr. Jeffrey Boyd

Click Here

 

 

 

 

The Cleaner Indoor

Air Campaign

Sponsored by IDA

 

Memorial Funds

 

Set Up a Fund in Memory

of Your Loved One.

 

View Site in Spanish, Portuguese, French, German, Italian.

 

Disclaimer: The data contained in this web site are for informational purposes only and are not to be construed as medical or legal advice. IDA is not endorsing or promoting the content of other websites, by listing their links and cannot be held responsible for their contents. Please seek a medical or legal professional for advice.

 

Copyright © 2006

The Invisible Disabilities Advocate® All Rights Reserved. 

 

IDA is a 501(c)(3)

Non-Profit Organization

This article contains excerpts from:

 

“But You LOOK Good:

A Guide to Understanding and Encouraging People

with Chronic, Debilitating Illness and Pain!” 

 

 

I Never Know

What to Say or Do!

 

paperx.wmf (2816 bytes)

 

-Learning How to Encourage and Help

Someone Living With a Chronic Condition-

 

 

Copyright © 2004

The Invisible Disabilities Advocate

www.MyIDA.org

 

See Copyright Regulations Below.

 

IDA is NOT a legal authority, 

this article may NOT be used in ANY legal situations.

 

ave you ever wanted to encourage someone living with a chronic illness, but it seems like you never know what to say? Moreover, when you finally think of something you just know will make them smile, do they snap back at you with frustration?

Well, you are not alone. Because we truly want to help our friend or family member with a chronic condition, we often try to think of just the right words we can say to make all of the pain vanish from their life. If we can just “fix it” then we will not have to see them suffer anymore. Unfortunately, when we do try to come up with a quick answer, we often end up saying something that seems to irritate or offend our loved one.

It is difficult to understand why they got upset, because to us what we had to say should have been helpful. Nonetheless, if we could simply jump into the life of our loved one, then we would see why our well-meaning comments were not so well-received. Often, it is our intention to help them “see the bright side” of their situation, so they can realize it is “not that bad.” The problem is that we have then failed to acknowledge their battle is very real and we have gone on to minimize its impact. 

Sometimes we even try to point out another person who is “worse off” or try to relate by saying, “Ya, I am tired too.” Often, we disregard their limitations by attempting to talk them into doing what they know they cannot or should not do. Because we forget how anguishing it is to be ill and laid up, sometimes we even try to tell them “how lucky” they are to not have to work or clean their house.

What’s more, we cannot resist acting as if solving the problem is so simple when we exclaim, “why can’t you just take this or do that?” Likewise, we want so badly for them to be feeling better, that we refuse to hear the truth and do not allow them to be open and honest with us about what they are going through.

Besides not knowing what to say, we often do not know what to do. We often wish we could do something to help, but do not even know where to start. Our own lives can be so overwhelming and busy that we could never fathom having the time to run errands, do chores and help clean someone else’s home too!

Nevertheless, what we fail to realize is that what might seem like an insignificant effort to us, may save our loved one an entire day or even week’s worth of energy. For example, we can pick up a few things at the store while we are already there and take out the trash when we drop them off. We can drop them by some fresh flowers, deliver a meal, bring over a video to share or pick up their dry cleaning. None of these takes much of our time, but it can make a world of difference to them!

In all, we can never fully comprehend what it is like to have a chronic condition, with all of the loss and pain it poses. Yet, we know we would not want to feel this way ourselves, so surely we can see what courage our loved one displays! We can even try to remember what it is like to have to put our lives on hold for even just a few days and tell our loved ones how amazed we are at their strength and perseverance!

People living with chronic illness/pain would never choose to willingly give up activities they used to enjoy! In fact, they would do just about anything to get their lives back! Therefore, we can rest assured, knowing they will keep fighting, researching and pursuing ways to regain their lives or at least prevent further progression of the disease.

Yes, acknowledging what is happening to a loved one means having to deal with all of its pain, mourning and changes, but do not sell yourself short! After all, if they are forced to live with it, we can certainly choose to live next to it!

 

Copyright © 2004 The Invisible Disabilities Advocate: www.MyIDA.org. "I Never Know What to Say or Do" contains excerpts from Part 2 and 3 of the 52 page booklet, But You LOOK Good: A Guide to Understanding and Encouraging People Living with Chronic Illness and Pain! Visit IDA's website for links, articles, support and booklet ordering. No interenet? Send a SASE to: IDA, P.O. Box 4067, Parker, CO 80134 to request a mail order form.

 

Copyright © 2004 The Invisible Disabilities Advocate

www.MyIDA.org 

 
By: Sherri Connell

But You LOOK Good! 

 

A Guide to Understanding and Encouraging People Living With Chronic Illness and Pain

 

Order Online at: www.MyIDA.org

 

To Order by Mail: Please send $5.25
(for printing, binding, shipping, etc.) for each booklet (includes postage in the US). Make the check payable to "IDA" and Send Order To:

 

IDA, P.O. Box 4067, Parker, CO 80134

 

*Note! IDA reserves the right to make changes, edits in content without notice. The booklet may differ slightly from the website! Proceeds go to IDA.

 

Copyright Regulations:

ELECTRONIC DISTRIBUTION: Due to internet theft, we do not allow our articles to be distributed or published in any way by email or posting on the internet. However, you may post or email a direct link to this article or the website.

 

HARDCOPY DISTRIBUTION OR PUBLISHING: Please write for permission from IDA before you distribute this article in any way to friends, family, support groups,

co-workers, offices, foundations, etc. Publication is strictly prohibited without permission. You must request permission from IDA if you would like to publish any article, excerpts or quotes from IDA.

Please consider a donation to help with our expenses,

if you would like more than 10 copies of any article(s).

WRITE IDA FOR PERMISSION TO DISTRIBUTE OR PUBLISH CLICK HERE

 

Support This Site

 

CIA is Sponsored by IDA

 

 

 

 

Copyright © 2006 The Invisible Disabilities Advocate. All Rights Reserved. 

IDA is a 501(c)(3) Non-Profit Organization.

Terms of Use.